{"id":2222558,"date":"2017-09-05T18:00:38","date_gmt":"2017-09-05T18:00:38","guid":{"rendered":""},"modified":"-0001-11-30T00:00:00","modified_gmt":"-0001-11-30T00:00:00","slug":"opdmk-kerkon-qasje-me-te-mire-ne-kujdes-shendetesor-per-persona-me-distrofi-muskulare","status":"publish","type":"post","link":"https:\/\/womensnetwork.org\/sq\/opdmk-kerkon-qasje-me-te-mire-ne-kujdes-shendetesor-per-persona-me-distrofi-muskulare\/","title":{"rendered":"OPDMK k\u00ebrkon qasje m\u00eb t\u00eb mir\u00eb n\u00eb kujdes sh\u00ebndet\u00ebsor p\u00ebr persona me distrofi muskulare"},"content":{"rendered":"<p>&nbsp;<span style=\"text-align: justify; text-indent: 0.5in;\">Me 17 gusht, Organizata e Personave me Distrofi Muskulare e Kosov&euml;s (OPDMK) mbajti takim informues me persona me distrofi muskulare dhe me familjar&euml;t e tyre. Drejtoresha e organizat&euml;s, Antigona Shestan, njoftoi t&euml; pranishmit p&euml;r q&euml;llimin e projektit dhe aktivitetet t&euml; cilat do t&rsquo;i realizojn&euml; gjat&euml; pes&euml; muajve t&euml; zbatimit t&euml; projektit.<\/span><\/p>\n<div style=\"margin-bottom:0in;margin-bottom:.0001pt;text-align:&#10;justify;text-indent:.5in;line-height:normal\">Q&euml;llimi i realizimit t&euml; projektit &ldquo;Kujdesi sh&euml;ndet&euml;sor &euml;sht&euml; i mir&euml; at&euml;her&euml; kur ka qasje p&euml;r t&euml; gjith&euml;&rdquo; &euml;sht&euml; p&euml;rmir&euml;simi i kujdesit sh&euml;ndet&euml;sor p&euml;r grat&euml; dhe vajzat me nevoja t&euml; ve&ccedil;anta si dhe p&euml;r personat me distrofi muskulare n&euml; p&euml;rgjith&euml;si. Po ashtu, ky projekt ka p&euml;r synim ngritjen e vet&euml;dijes s&euml; institucioneve komunale dhe atyre sh&euml;ndet&euml;sore p&euml;r t&euml; siguruar qasje m&euml; t&euml; leht&euml; n&euml; sh&euml;rbime cil&euml;sore p&euml;r grat&euml; dhe vajzat.<\/div>\n<div style=\"margin-bottom:0in;margin-bottom:.0001pt;text-align:&#10;justify;text-indent:.5in;line-height:normal\">N&euml; komun&euml;n e Prizrenit jan&euml; 34 persona me distrofi muskulare, prej t&euml; cil&euml;ve 24 jan&euml; gra dhe vajza n&euml; karroc&euml;. Sfida m&euml; e madhe &euml;sht&euml; sh&euml;ndeti i k&euml;tyre grave dhe vajzave me nevoja t&euml; ve&ccedil;anta p&euml;r t&euml; cilat kujdesen n&euml; t&euml; shumt&euml;n e rasteve n&euml;nat dhe motrat e tyre me njohuri shum&euml; t&euml; limituara p&euml;r t&euml; ofruar edhe kujdes sh&euml;ndet&euml;sor, duke shtuar k&euml;tu edhe stigmat n&euml; familje, shoq&euml;ri dhe institucione. P&euml;r shkak t&euml; gjendjes s&euml; tyre fizike, grat&euml; dhe vajzat me nevoja t&euml; ve&ccedil;anta kan&euml; m&euml; shum&euml; predispozita t&euml; vuajn&euml; nga s&euml;mundje t&euml; ndryshme p&euml;rcjell&euml;se, prandaj mungesa apo vonesa e kujdesit sh&euml;ndet&euml;sor mund t&euml; shkaktojn&euml; pasoja t&euml; r&euml;nda n&euml; jet&euml;n e tyre.&nbsp;<\/div>\n<div style=\"margin-bottom:0in;margin-bottom:.0001pt;text-align:&#10;justify;text-indent:.5in;line-height:normal\">Nj&euml;ra nga t&euml; pranishmet theksoi se &ldquo;Ka shum&euml; raste kur edhe doktor&euml;t e kryesisht stomatolog&euml;t nuk i pranojn&euml; f&euml;mij&euml;t me nevoja t&euml; ve&ccedil;anta p&euml;r shkak t&euml; frik&euml;s s&euml; keq&euml;simit t&euml; gjendjes s&euml; tyre, dhe kjo b&euml;n q&euml; ne t&euml; k&euml;rkojm&euml; ndihm&euml; tek doktor&euml;t privat ku shpesh her&euml; edhe prej tyre refuzohemi&rdquo;.<\/div>\n<div style=\"margin-bottom:0in;margin-bottom:.0001pt;text-align:&#10;justify;text-indent:.5in;line-height:normal\">T&euml; pranishmeve ju nda nga nj&euml; pyet&euml;sor me pyetje p&euml;r personat me distrofi muskulare si dhe p&euml;r familjar&euml;t t&euml; cil&euml;t kujdes&euml;n p&euml;r ta. Shumica e p&euml;rgjigjjeve ishin se me s&euml; shumti kujdeset n&euml;na dhe motrat pasi q&euml; baballar&euml;t n&euml; t&euml; shumt&euml;n e rasteve jan&euml; n&euml; pun&euml;. Nd&euml;rkaq kur b&euml;hej fjal&euml; p&euml;r dhimbjet p&euml;rgjigjet ishin se &ldquo;provojn&euml; t&euml; durojn&euml; deri sa dhimbja t&euml; jet&euml; e padurueshme&rdquo;.<\/div>\n<div style=\"margin-bottom:0in;margin-bottom:.0001pt;text-align:&#10;justify;text-indent:.5in;line-height:normal\">Resma, an&euml;tare e organizat&euml;s dhe nj&euml;herit person me distrofi muskulare theksoi se &ldquo;shpesh babai i saj thot&euml; ajo e duron dhimbjen m&euml; shum&euml; se krejt ne&rdquo;, p&euml;rderisa p&euml;r ciklet menstruale vajzat ndihen t&euml; lira ti diskutojn&euml; vet&euml;m me n&euml;n&euml;n apo motrat e tyre. &ldquo;Reagimi i prind&euml;rve ndaj nj&euml; shqet&euml;simi sa do t&euml; vog&euml;l sh&euml;ndet&euml;sor &euml;sht&euml; tep&euml;r i madh sa q&euml; nganj&euml;her&euml; &ldquo;teprohet nga kujdesi&rdquo;&rdquo; u shpreh nj&euml; vajz&euml; tjet&euml;r pjes&euml;marr&euml;se.<\/div>\n<div style=\"margin-bottom:0in;margin-bottom:.0001pt;text-align:&#10;justify;text-indent:.5in;line-height:normal\">Duke diskutuar k&euml;shtu shum&euml; probleme me t&euml; cilat ballafaqohen, personat me distrofi muskulare dhe familjar&euml;t e tyre shpresojn&euml; q&euml; do t&euml; punohet m&euml; shum&euml; me k&euml;t&euml; kategori t&euml; shoq&euml;ris&euml; me q&euml;llim t&euml; integrimit sa m&euml; t&euml; mir&euml; t&euml; tyre n&euml; shoq&euml;ri, me theks t&euml; ve&ccedil;ant&euml; n&euml; pun&euml;sim dhe shkollim.<\/div>\n<div style=\"margin-bottom:0in;margin-bottom:.0001pt;text-align:&#10;justify;text-indent:.5in;line-height:normal\">Ky projekt mb&euml;shtetet nga Fondi i Grave t&euml; Kosov&euml;s (FGK) dhe financohet nga Agjensioni Austriak&nbsp; p&euml;r Zhvillim (ADA).&nbsp;<\/div>\n","protected":false},"excerpt":{"rendered":"<p>&nbsp;Me 17 gusht, Organizata e Personave me Distrofi Muskulare e Kosov&euml;s (OPDMK) mbajti takim informues me persona me distrofi muskulare dhe me familjar&euml;t e tyre. Drejtoresha e organizat&euml;s, Antigona Shestan, njoftoi t&euml; pranishmit p&euml;r q&euml;llimin e projektit dhe aktivitetet t&euml; cilat do t&rsquo;i realizojn&euml; gjat&euml; pes&euml; muajve t&euml; zbatimit t&euml; projektit. Q&euml;llimi i realizimit t&euml; [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_FSMCFIC_featured_image_caption":"","_FSMCFIC_featured_image_nocaption":"","_FSMCFIC_featured_image_hide":"","footnotes":""},"categories":[58],"tags":[],"class_list":["post-2222558","post","type-post","status-publish","format-standard","hentry","category-lajme"],"acf":[],"_links":{"self":[{"href":"https:\/\/womensnetwork.org\/sq\/wp-json\/wp\/v2\/posts\/2222558","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/womensnetwork.org\/sq\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/womensnetwork.org\/sq\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/womensnetwork.org\/sq\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/womensnetwork.org\/sq\/wp-json\/wp\/v2\/comments?post=2222558"}],"version-history":[{"count":0,"href":"https:\/\/womensnetwork.org\/sq\/wp-json\/wp\/v2\/posts\/2222558\/revisions"}],"wp:attachment":[{"href":"https:\/\/womensnetwork.org\/sq\/wp-json\/wp\/v2\/media?parent=2222558"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/womensnetwork.org\/sq\/wp-json\/wp\/v2\/categories?post=2222558"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/womensnetwork.org\/sq\/wp-json\/wp\/v2\/tags?post=2222558"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}