{"id":3346362,"date":"2020-07-23T13:53:02","date_gmt":"2020-07-23T13:53:02","guid":{"rendered":"https:\/\/womensnetwork.org\/?p=3346362"},"modified":"2020-07-23T14:00:28","modified_gmt":"2020-07-23T14:00:28","slug":"opdmk-shenon-javen-e-distrofise-muskulare","status":"publish","type":"post","link":"https:\/\/womensnetwork.org\/sq\/opdmk-shenon-javen-e-distrofise-muskulare\/","title":{"rendered":"OPDMK sh\u00ebnon Jav\u00ebn e Distrofis\u00eb Muskulare"},"content":{"rendered":"\n

Organizata an\u00ebtare e Rrjetit t\u00eb Grave t\u00eb Kosov\u00ebs (RrGK), Organizata e Personave me Distrofi Muskulare e Kosov\u00ebs (OPDMK) ka sh\u00ebnuar Jav\u00ebn e Distrofis\u00eb Muskulare 2020 me realizimin e nj\u00eb video vet\u00ebdij\u00ebsuese, p\u00ebrmes s\u00eb cil\u00ebs vajza dhe gra me aft\u00ebsi t\u00eb kufizuara tregojn\u00eb p\u00ebrjetimet dhe v\u00ebshtir\u00ebsit\u00eb q\u00eb ato hasin vazhdimisht.  <\/p>\n\n\n\n

Video ka qen\u00eb m\u00ebnyra m\u00eb e p\u00ebrshtatshme duke pasur parasysh situat\u00ebn e krijuar nga p\u00ebrhapja e pandemis\u00eb COVID-19.  <\/p>\n\n\n\n

Kjo gj\u00eb u b\u00eb e mundur fal\u00eb p\u00ebrkrahjes s\u00eb marr\u00eb nga nisma kat\u00ebr vje\u00e7are \u201cFuqizimi i Pjes\u00ebmarrjes s\u00eb Grave n\u00eb Politik\u00eb\u201d, n\u00eb bashk\u00ebpunim me RrGK-n\u00eb, mb\u00ebshtetur nga Zyra e Bashkimit Evropian (BE) n\u00eb Kosov\u00eb.   <\/p>\n\n\n\n

Antigona Shestan, Drejtore Ekzekutive e OPDMK-s\u00eb ka folur lidhur me r\u00ebnd\u00ebsin\u00eb e k\u00ebsaj nisme n\u00eb jet\u00ebsimin e objektivave t\u00eb OPDMK-s\u00eb.  <\/p>\n\n\n\n

\u201cN\u00eb vend t\u00eb aktiviteteve t\u00eb zakonshme sportive dhe rekreative, k\u00ebt\u00eb vit p\u00ebrmes videos kemi synuar q\u00eb t\u00eb kontribuojn\u00eb n\u00eb ngritjen e vet\u00ebdijes te qytetar\u00ebt e Kosov\u00ebs lidhur me gjendjen e personave me distrofi muskulare. Fal\u00eb mb\u00ebshtetjes s\u00eb marr\u00eb nga Zyra e BE-s\u00eb n\u00eb Kosov\u00eb, p\u00ebrmes k\u00ebsaj video vet\u00ebdij\u00ebsuese z\u00ebri i grave me distrofi muskulare u d\u00ebgjua m\u00eb shum\u00eb, duke pasur parasysh q\u00eb kjo video kishte edhe mbulueshm\u00ebri mediale\u201d, tha ajo.  <\/p>\n\n\n\n

OPDMK \u00e7do vit ka nd\u00ebrmarr\u00eb aktivitete p\u00ebr p\u00ebrmir\u00ebsimin e t\u00eb drejtave t\u00eb k\u00ebtij komuniteti, kurse p\u00ebr r\u00ebnd\u00ebsin\u00eb e sh\u00ebnimit t\u00eb Jav\u00ebs s\u00eb Distrofis\u00eb Muskulare flet edhe Resmije Rrahmani, Mobilizuese n\u00eb kuad\u00ebr t\u00eb k\u00ebtij projekti n\u00eb OPDMK.  <\/p>\n\n\n\n

\u201cSh\u00ebnimi i k\u00ebsaj jave \u00ebsht\u00eb shum\u00eb i r\u00ebnd\u00ebsish\u00ebm p\u00ebr njer\u00ebzit me distrofi muskulare si dhe familjet e tyre. K\u00ebshtu nxjerren n\u00eb pah v\u00ebshtir\u00ebsit\u00eb dhe pengesat q\u00eb hasin njer\u00ebzit  me distrofi. Dua t\u00eb theksoj se i r\u00ebnd\u00ebsis\u00eb s\u00eb ve\u00e7ant\u00eb \u00ebsht\u00eb fakti se u kemi dh\u00ebn\u00eb hap\u00ebsir\u00ebn e merituar vajzave dhe grave me aft\u00ebsi t\u00eb kufizuara.\u201d <\/em><\/p>\n\n\n\n

\"\"<\/figure>\n\n\n\n

Nj\u00eb nga vajzat q\u00eb jep mesazh p\u00ebrmes k\u00ebsaj video \u00ebsht\u00eb edhe Pranvera Musaj nga Suhareka.  <\/p>\n\n\n\n

\u201cSado q\u00eb n\u00eb kushte pandemie, u munduam q\u00eb t\u00eb b\u00ebjm\u00eb di\u00e7ka p\u00ebr t\u00eb sh\u00ebnuar k\u00ebt\u00eb jav\u00eb, q\u00eb sado pak t\u00eb b\u00ebjm\u00eb nj\u00eb hap para duke i shtyer edhe vajzat e tjera q\u00eb jan\u00eb sikur ne q\u00eb t\u00eb mos heqin dor\u00eb asnj\u00ebher\u00eb nga \u00ebndrrat e tyre, sidomos nga shkollimi e pun\u00ebsimi\u201d, shprehet Musaj, duke shtuar se \u00ebsht\u00eb e bindur q\u00eb kjo nism\u00eb do t\u00eb ndikoj\u00eb p\u00ebr ndryshime pozitive n\u00eb shoq\u00ebri.  <\/em><\/p>\n\n\n\n

\"\"<\/figure>\n\n\n\n

N\u00eb kuad\u00ebr t\u00eb k\u00ebsaj nisme OPDMK ka hartuar edhe Strategjin\u00eb Avokuese p\u00ebr grat\u00eb dhe vajzat me aft\u00ebsi t\u00eb kufizuara.<\/a>  <\/p>\n\n\n\n

Kurse, videon e plot\u00eb p\u00ebr Jav\u00ebn e Distrofis\u00eb Muskulare mund ta ndiqni K\u00cbTU.<\/a>  <\/p>\n\n\n\n

LEXO EDHE: <\/strong> <\/p>\n\n\n\n

OPDMK avokon p\u00ebr pjes\u00ebmarrjen e grave<\/strong> me aft\u00ebsi t\u00eb kufizuara n\u00eb politik\u00eb<\/strong><\/a><\/strong> <\/p>\n\n\n\n

OPDMK synon fuqizimin e pjes\u00ebmarrjes s\u00eb grave me aft\u00ebsi t\u00eb kufizuara n\u00eb politik\u00eb<\/strong><\/a>\u00a0<\/strong>\u00a0<\/p>\n\n\n\n

<\/p>\n\n\n\n

Realizimi i k\u00ebsaj video si dhe kjo nism\u00eb mb\u00ebshteten nga Zyra e Bashkimit Evropian (BE) n\u00eb Kosov\u00eb.<\/p>\n","protected":false},"excerpt":{"rendered":"

Organizata an\u00ebtare e Rrjetit t\u00eb Grave t\u00eb Kosov\u00ebs (RrGK), Organizata e Personave me Distrofi Muskulare e Kosov\u00ebs (OPDMK) ka sh\u00ebnuar Jav\u00ebn e Distrofis\u00eb Muskulare 2020 me realizimin e nj\u00eb video vet\u00ebdij\u00ebsuese, p\u00ebrmes s\u00eb cil\u00ebs vajza dhe gra me aft\u00ebsi t\u00eb kufizuara tregojn\u00eb p\u00ebrjetimet dhe v\u00ebshtir\u00ebsit\u00eb q\u00eb ato hasin vazhdimisht.   Video ka qen\u00eb m\u00ebnyra m\u00eb e p\u00ebrshtatshme duke pasur parasysh situat\u00ebn e krijuar nga p\u00ebrhapja e pandemis\u00eb COVID-19.   Kjo gj\u00eb u b\u00eb e […]<\/p>\n","protected":false},"author":7,"featured_media":3346363,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_FSMCFIC_featured_image_caption":"","_FSMCFIC_featured_image_nocaption":"","_FSMCFIC_featured_image_hide":"","footnotes":""},"categories":[58],"tags":[],"class_list":["post-3346362","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-lajme"],"acf":[],"_links":{"self":[{"href":"https:\/\/womensnetwork.org\/sq\/wp-json\/wp\/v2\/posts\/3346362","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/womensnetwork.org\/sq\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/womensnetwork.org\/sq\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/womensnetwork.org\/sq\/wp-json\/wp\/v2\/users\/7"}],"replies":[{"embeddable":true,"href":"https:\/\/womensnetwork.org\/sq\/wp-json\/wp\/v2\/comments?post=3346362"}],"version-history":[{"count":2,"href":"https:\/\/womensnetwork.org\/sq\/wp-json\/wp\/v2\/posts\/3346362\/revisions"}],"predecessor-version":[{"id":3346378,"href":"https:\/\/womensnetwork.org\/sq\/wp-json\/wp\/v2\/posts\/3346362\/revisions\/3346378"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/womensnetwork.org\/sq\/wp-json\/wp\/v2\/media\/3346363"}],"wp:attachment":[{"href":"https:\/\/womensnetwork.org\/sq\/wp-json\/wp\/v2\/media?parent=3346362"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/womensnetwork.org\/sq\/wp-json\/wp\/v2\/categories?post=3346362"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/womensnetwork.org\/sq\/wp-json\/wp\/v2\/tags?post=3346362"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}